My name is Lucy Carr-Seaman, founder of Seenin and I would like to share my story about how and why I started my company and its development over time. My daughter, Hester was born in 1993 and was diagnosed with Aicardi syndrome at 8 weeks old. She is the inspiration behind Seenin and the beginning of our story. Aicardi syndrome is fairly rare combining agenesis of the corpus callosum with visual impairment, epilepsy and many other features.
Sufferers tend to fall under the profound and multiple disability heading and I soon learnt what this would entail not only in terms of her care but I also discovered how hard it was to find many of the items I needed to make her life more comfortable.
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